Talking about psoriatic arthritis
Psoriatic arthritis (PsA) can affect your relationships with others
You might feel frustrated or embarrassed,1 miss out on social activities1,2 or have to take time off work because of your psoriatic arthritis.3 While all of this could make you feel lonely or isolated, please remember that you are not alone.2
TOP TIP
“I used to let it stop me from going about my life, but I refuse to let it get in the way anymore.”*
Open up
Talking about your PsA with others may be daunting, especially if you’re used to hiding it, but having a conversation could make you feel free and boost your confidence. It could also help you get the support you need from those around you. There’s no pressure to do so, but if you want to have a dialogue with a friend, family member or colleague, here are some general tips about where to start:4
- Choose a way you feel most comfortable with, such as email or face-to-face
- Decide on a time when neither you nor the other person are busy
- Don’t be afraid to ask for support, e.g. devices to make your workspace more comfortable or time off for doctor’s appointments, or for students, extra support to get back into studies after time off or tailored sports - think about what it is that you need
- Have an objective in mind – do you need them to understand what you need, why you may feel down or why you sometimes can’t socialise?
- People will often ask questions, so read up on the facts and have some answers prepared – this website is a good place to start!
It takes courage to have tough conversations, but it might be helpful to open up
It’s also very important to be open and honest with your healthcare professional – this could ensure you’re on the right treatment for you, so that your PsA doesn’t get in the way of you living your life exactly as you choose.5
Want to make the most of your doctor’s appointment?
If you are experiencing symptoms, or don’t feel that your treatment is controlling your PsA, please speak to your healthcare professional.5 Take a look at our helpful tips to help you have a productive conversation during your next appointment.
There are also many other patients with PsA who will understand just what you’re going through.2 Your healthcare professional may be able to direct you to local or online groups where you can meet others with PsA. Alternatively, try searching below to find a group local to you.
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With COVID-19 part of all our lives, you might not always need to see your doctor in the flesh.
*Representative of patient experience
References
- WebMD. The emotional effects of psoriatic arthritis. Available at: https://www.webmd.com/arthritis/psoriatic-arthritis/the-emotional-toll-of-psoriatic-arthritis. Accessed: November 2023.
- Everyday Health. 15 things you only understand if you have psoriatic arthritis. Available at: https://www.everydayhealth.com/hs/psoriatic-arthritis-management-treatment/only-understand-if-have-psoriatic-arthritis/. Accessed: November 2023.
- Everyday Health. On the Job with Psoriatic Arthritis. Available at:https://www.everydayhealth.com/hs/psoriatic-arthritis-management-treatment/managing-psoriatic-arthritis-work/. Accessed: November 2023.
- Verywell Health. Common Issues When Discussing Psoriasis. Available at: https://www.verywellhealth.com/conversation-issues-discussing-psoriasis-4779961#general-strategies. Accessed: November 2023.
- NHS. Psoriatic arthritis. Available at: https://www.nhs.uk/conditions/psoriatic-arthritis/. Accessed: November 2023.
