Breathe In, Speak Out

Breathe In, Speak Out Conversation Kit

Speak out about PAH to make a difference. PAH comes with many challenges, and not all are physical. We know the journey can be daunting, lonely, and frustrating. We want to change this so it can be inspiring, hopeful, and empowering.

Speaking up about how you’re feeling, as well as what your priorities and treatment management preferences are, can make the difference in your experience with PAH.

You may be a person living with PAH or a family member, friend or loved one of someone that is. Breathe In, Speak Out recognises that everyone has a story to tell about their experience with PAH, and everyone can learn from the experiences of others.

That’s why we’ve created this conversation kit, in partnership with the PAH community, in a digital or downloadable format to provide the tools for you to help you play an active role in managing your PAH and amplify your voice and your experiences.

The conversation kit can help you to ask the right questions, discuss your PAH with confidence and openness, and partner with your healthcare team to make the best choices and get the most from your PAH treatment. You can use these either by yourself, or with your family, friends, and healthcare team.

Breathe In, Speak Out: this is your journey.

Two women talking

What's inside the conversation kit?

Download the conversation kit here, to take with you on the go

Additional resources to support you