It is completely normal to experience feelings of uncertainty, loneliness and/or isolation or potentially feeling frustrated or even angry. Everyone’s experience is unique to them and how a person feels can fluctuate and change along the way.
Research has shown a high number of people living with PAH experience, or are diagnosed with, anxiety and/or depression - which can have a huge impact on quality of life.
Therefore managing mental health as part of the wider implications of being diagnosed with PAH, is hugely important.
To help keep your mental health top of mind – here are some tips to consider:
Keep a diary and make a note of when you experience poor mental health symptoms e.g. anxiousness or feelings of depression, and note what happens when you do. This may allow you to spot patterns and could help you describe your symptoms and feelings to your healthcare professional during your next appointment
Try to remember you are not alone, many people – whether living with PAH or not – have experienced mental health challenges. The important thing is that poor mental health is recognised and prioritised as part of your overall care to achieve the best possible health outcomes