For people living with PAH there are a number of things to consider such as choosing a career, navigating the workforce and achieving job satisfaction day-to-day, all while managing life with a chronic health condition. This can make finding or maintaining a career challenging.
However, with the right support, many people living with PAH are able to have fulfilling careers and job satisfaction.
Applying for a job can take some time. While looking for a job, set small goals to help keep a sense of progression and fulfilment throughout the application process
Consider the location and accessibility of any place of work. Things like length of commute and distances from your workspace to amenities are worth thinking about
Consider volunteering or taking an online course. This can help to provide a sense of fulfilment and purpose if you would like to work but do not feel well enough for permanent employment
Some jobs, especially those that are physically demanding e.g. a career involving heavy lifting or long hours, may be challenging if living with PAH. If this is the case for you, talk to your employer to see how your job role could be adapted to fit your needs, for example regular rest breaks could be agreed or potentially moving to a different role within the organisation that better suits you
Think about your current working environment and how this may affect your health. For example, if you work in an environment that has poor air quality you may want to ask for equipment/technology to enable you to be more comfortable when carrying out your job
It is recommended to take gentle exercise, e.g. light walking during the working day, especially when working in a sedentary job.
In many countries, it is entirely your choice to share your diagnosis. While some people feel strongly about keeping their condition private, others have greatly benefited from sharing their experience of PAH with their employer/co-workers. Explaining PAH to an employer or your co-workers can be challenging, as they most likely haven’t heard of the disease before. Think about sharing your diagnosis with your employer or colleagues that you are close to in case you become unwell at work