PAH Patient Charter

What is the PAH Patient Charter and why do we need one?


Pulmonary arterial hypertension (PAH) is a rare but serious condition, however great advancements have been made in recent years.

[1]
[2]
There are now a variety of treatment options available, but our understanding of the disease is still growing and it’s important that people living with PAH know what to expect during their journey.
[1]
[2]

The PAH Patient Charter was created in collaboration with an international group of patients, patient advocacy group representatives, and healthcare professionals.

It leverages their personal experiences and expertise with PAH to provide you with the information you need to ensure you’re aware of the level of care you should be able to expect, from diagnosis to the ongoing management of your condition.

patient-charter

Download the patient charter now

patient-charter-journey

We hope that the information in the Charter will help you, your healthcare professionals, and caregivers to:

Communicate effectively with each other

Make decisions together

Agree on a care plan that is appropriate for you

How has the PAH Patient Charter been created?

The PAH Patient Charter is a consensus outlining the standards of holistic care that we believe everyone with PAH should receive.

It is based on the most current (2015) European Society of Cardiology/European Respiratory Society (ESC/ERS) guidelines, which are used internationally, and has been developed by an international group of patients, patient advocacy group representatives and healthcare professionals.

ph-human-pah-patient-charter

Find out more about the patient advocacy groups involved

PHA Europe, Europe

E: info@phaeurope.org

W: www.phaeurope.org

Pulmonary Hypertension Association (PHA), US

E: PHA@PHAssociation.org

W: www.phassociation.org

phaware global association®, US

E: info@phaware.global

W: www.phaware.global

pulmonale hypertonie e.v., Germany

E: info@phev.de

W: www.phev.de

Hellenic Pulmonary Hypertension, Greece

E: info@hellenicpulmonaryhypertension.gr

W: www.hellenicpulmonaryhypertension.gr

PH Singapore, Singapore

E: admin@phsingapore.org

W: www.phsingapore.org

Sociedad Latina de Hipertensión Pulmonar, Latin America

E: info@sociedadlatinahp.org

W: www.sociedadlatinahp.org

Additional resources to support you

References

NHS. Pulmonary hypertension. Available at: https://www.nhs.uk/conditions/pulmonary-hypertension/ Last accessed October 2021.
American Lung Association. Learn about pulmonary arterial hypertension. Available at: https://www.lung.org/lung-health-diseases/lung-disease-lookup/pulmonary-arterial-hypertension/learn-about-pulmonary-arterial-hypertension Last accessed October 2021.
Logo